This morning I woke up to unsettled nerves. Today I met with the hematologist to discuss my MTHFR and Lupus Anticoagulant and I was uncertain how this news would impact my life or the upcoming IVF protocol. The appointment was confusing, provided a little relief, added a cause for fear of something I never imagined, and still I left with a few questions unanswered.
What I learned. The Lupus Anticoagulant syndrome is one of the most confusing blood disorders one can have. The clotting antibodies that are present in those with Lupus Anticoagulant can come and go (show up for months and then not be present for some time before showing up again), individuals who have it can go years without any issues, is something that “just happens” and is not a genetic issue, the antibodies can be present in individuals who do NOT have the disorder (in almost 5% of the general population), and it was first discovered in persons with Lupus (the autoimmune disease). I also learned that it is not necessarily something that would require daily anticoagulants for the rest of my life. Really, only for high risk situations like surgery, broken legs, pregnancy, and birth.
Although my original test came out positive for LA, it may not be conclusive and more blood was provided. The hematologist feels I have some factors that point to LA but others that do not. Further testing was needed and within a week I will know for certain if I do indeed have Lupus Anticoagulant. Regardless of how the tests come back the hematologist wants me on Lovenox from at least the day of transfer through the first beta test (pregnancy hormone test). He discussed that it is likely that he’ll want me on Lovenox through the last month of pregnancy, switching to a different anticoagulant 2 weeks prior to due date, and then for 6 weeks after delivery.
Here is where the fear comes in. The 6 weeks after delivery hold the greatest risk for things like blood clots in legs and pulmonary embolism. Women naturally develop increased clotting antibodies as their pregnancy develops. If they didn’t women would die from blood loss during delivery. So, a person who already has high clotting antibodies acquires more chance for dangerous clots to occur. Blah! Nothing is easy!
I feel like I’m rambling so I will call this post complete.